Endocrinology · PANCE / PANRE

Primary Hyperparathyroidism

Autonomous PTH oversecretion (most often a single adenoma) producing hypercalcemia.

Also known as: primary hyperparathyroidism, parathyroid adenoma, PHPT, hyperparathyroidism

Overview

Inappropriately elevated or non-suppressed PTH in the setting of hypercalcemia. Most commonly due to a solitary parathyroid adenoma (~85%); less often hyperplasia of all four glands (~10-15%), double adenoma (~4%), or parathyroid carcinoma (<1%).

Epidemiology

Most common cause of outpatient hypercalcemia. Prevalence ~1 in 1000; up to 1 in 500 women >50. Female-to-male ratio ~3:1. Peak incidence 50-60 years. Most cases now detected on routine chemistry panels (mild, asymptomatic).

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Risk factors

  • Female sex, postmenopausal age
  • Prior neck radiation
  • Lithium therapy (alters set point)
  • Familial syndromes: MEN1 (parathyroid + pituitary + pancreas), MEN2A (parathyroid + medullary thyroid + pheo), familial isolated hyperparathyroidism, HPT-jaw tumor syndrome (CDC73 mutation)
  • Chronic vitamin D deficiency (can mask presentation)

Pathophysiology

Loss of calcium-sensing regulation in one or more parathyroid glands → autonomous PTH secretion despite normal or elevated serum calcium. PTH increases bone resorption (osteoclast activation), enhances renal calcium reabsorption and phosphate excretion, and stimulates 1-alpha-hydroxylation of vitamin D (boosting intestinal calcium absorption). Net effect: hypercalcemia, hypophosphatemia, and skeletal/renal pathology.

Clinical presentation

Symptoms

  • 'Stones, bones, abdominal groans, psychic moans, fatigue overtones'
  • Most are asymptomatic — discovered on routine calcium
  • Renal: nephrolithiasis (calcium oxalate or phosphate), polyuria, polydipsia, nephrocalcinosis
  • Skeletal: bone pain, pathologic fracture, osteoporosis
  • GI: anorexia, nausea, constipation, peptic ulcer, pancreatitis
  • Neuropsychiatric: depression, fatigue, memory loss, confusion
  • Cardiovascular: hypertension, short QT, LVH

Signs / physical exam

  • Often a normal exam
  • Band keratopathy (rare), brown tumors (rare advanced disease)
  • Hypertension, sometimes bradyarrhythmia
  • DEXA: cortical bone loss (distal radius > spine), fractures

Classic findings

Postmenopausal woman with kidney stones, mild fatigue, osteoporosis, and incidentally elevated calcium on routine labs.

Differential diagnosis

  • Secondary hyperparathyroidism — Compensatory PTH elevation from hypocalcemia or vitamin D deficiency; calcium normal/low, phosphate often elevated (CKD)
  • Tertiary hyperparathyroidism — Autonomous PTH after prolonged secondary HPT (long-standing CKD); calcium elevated; usually requires parathyroidectomy
  • Familial hypocalciuric hypercalcemia (FHH) — AD inactivating CaSR mutation; mild lifelong hypercalcemia with LOW urinary calcium (Ca/Cr clearance ratio <0.01); DO NOT operate
  • Malignancy-associated hypercalcemia — PTH suppressed; PTHrP elevated (squamous cell, renal, breast) or osteolytic mets, or 1,25-OH vitamin D from lymphoma
  • Vitamin D toxicity — Elevated 25-OH vitamin D, suppressed PTH
  • Granulomatous disease (sarcoidosis, TB) — Elevated 1,25-OH vitamin D from macrophage activity, suppressed PTH
  • Milk-alkali syndrome — Large calcium carbonate ingestion; suppressed PTH, alkalosis, AKI
  • Hyperthyroidism, thiazides, lithium — Drug or hormonal causes; review medication list

Diagnostic workup

Diagnostic criteria

Hypercalcemia + inappropriately elevated or non-suppressed PTH + low urinary calcium excretion rules OUT FHH (urinary calcium high or normal in PHPT, low in FHH).

Labs

  • Serum calcium (corrected for albumin) and ionized calcium — confirm hypercalcemia
  • PTH (intact) — elevated or inappropriately normal
  • Phosphate (low), magnesium, alkaline phosphatase (elevated in bone disease)
  • 25-OH vitamin D (replace if deficient before final assessment), 1,25-OH vitamin D
  • 24-hour urine calcium and creatinine — calculate calcium/creatinine clearance ratio to exclude FHH (<0.01 = FHH)
  • BUN, creatinine, eGFR
  • DEXA scan (lumbar spine, hip, AND distal third of radius)
  • Consider genetic testing for MEN1/MEN2 if young, family history, or multigland disease

Imaging

  • Renal ultrasound or CT (assess for stones, nephrocalcinosis)
  • Pre-operative localization: Sestamibi (Tc-99m) scan ± SPECT/CT, neck ultrasound, 4D CT — identifies adenoma for minimally invasive parathyroidectomy
  • Not all guidelines require localization — surgeon-dependent

Diagnostic algorithm

DiagnosisCaPTHPhosphateUrine CaKey feature
Primary HPTHighHigh / inappropriateLowHigh / normalMost often single adenoma
FHHMildly highHigh / inappropriateNormalLOW (Ca/Cr <0.01)AD, lifelong; do not operate
Secondary HPT (CKD)Low / normalHighHighVariableCompensatory; treat underlying
Tertiary HPTHighHighVariableVariableAfter long-standing 2°; parathyroidectomy
Malignancy (PTHrP)HighLOW (suppressed)LowHighSquamous, renal, breast cancer
Vitamin D toxicityHighLowHighHighElevated 25-OH vitamin D
Differentiating causes of hypercalcemia by calcium, PTH, phosphate, and urinary calcium.

Complications

  • Osteoporosis, fragility fracture, osteitis fibrosa cystica (advanced)
  • Nephrolithiasis, nephrocalcinosis, CKD
  • Hypercalcemic crisis, pancreatitis, peptic ulcer
  • Surgical: recurrent laryngeal nerve injury, hypoparathyroidism (especially after subtotal/total parathyroidectomy)
  • Hungry bone syndrome post-op: profound hypocalcemia and hypophosphatemia
  • Persistent or recurrent hyperparathyroidism (missed gland, ectopic location)

PANCE pearls

  • Always check a 24-h urinary calcium to exclude FHH before parathyroidectomy — operating on FHH does NOT cure hypercalcemia.
  • Lithium and thiazide diuretics elevate calcium and PTH — stop if possible and re-test.
  • Always measure DEXA at distal third of radius — primary HPT preferentially affects cortical bone.
  • Intra-operative PTH should drop >50% within 10 min and to normal range — confirms removal of the offending gland.
  • Post-parathyroidectomy 'hungry bone syndrome': skeleton avidly takes up Ca and PO4, producing severe hypocalcemia — pre-treat with vitamin D and calcium.

References

  • Fourth International Workshop 2014 — Guidelines for the Management of Asymptomatic Primary Hyperparathyroidism (Bilezikian et al., J Clin Endocrinol Metab 2014)
  • AAES 2016 — American Association of Endocrine Surgeons Guidelines for Definitive Management of Primary Hyperparathyroidism (Wilhelm et al., JAMA Surg 2016)
  • Endocrine Society 2011 — Evaluation and Treatment of Hypercalcemia of Malignancy (Stewart, NEJM 2005) and ES guideline on vitamin D

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